EDS Hub:
Patient Resources
Best Practice Education & Resources for Ehlers-Danlos Syndromes & Associated Conditions
Patient Health Forms
How do I get the best value from my medical appointments? What do I need to track about new symptoms or treatments? Forms to help you think clearly about convoluted health decisions... without overwhelm.
Recommended Resources
Useful tools, information, research and resources to make understanding and living with these conditions a little easier.
Coronavirus COVID-19 Info
We have curated additional resources specifically to help manage the additional physical and mental stresses of life with a chronic condition during this pandemic.
(Last updated 17 March 2020)
Overwhelmed? Brain foggy?
"These health forms are pretty self explanatory and intuitive. That's what you need when everything is Just. Too. Much.” - Jennifer
Patient Health Forms
“It’s a good resource especially for people who are new to chronic illness or feel overwhelmed.
"Can really help to sort things out mentally. And very well made too. I like the layout and design. Clear and structured without being too boring.” - Inara
Patients Love It!
"I have to say I'm really impressed. My feelings were that they were thorough but not overwhelming, very clear and concise and from someone who also experienced the stress of seeing too many doctors with too many symptoms and varying diagnoses and trying to make sense of it all AND write it down in a way that I could keep track of - you did a great job! I feel like anyone with chronic disease would really appreciate this and I felt a kind of reassurance knowing that if I were needing to explain a confusing and long medical history from my scattered mind, this would benefit both the patient and treating doctor. Bless you guys, this is so helpful." - Shiva
Best Practice Education and Resources
Click any of the books below to view the full library of patient-friendly recommended resources.
