About
EDS Hub provides brainfog-friendly tools and resources that make it easier to live with Ehlers-Danlos Syndrome & Associated Conditions
Curated resources
When your body's quirks don't make sense to you or to doctors, it's important to have the best available info and support. We flatten the learning curve, so you don't have to reinvent the wheel.
To reduce overwhelm
These symptoms are complex, and so is the medical system. Navigating with brainfog is tough. We help you think and communicate clearly about your health decisions.
By patients, for patients
Many of the most insightful researchers and clinicians in this field also live with EDS. As patient-researchers, we find and adapt credible resources to support your quality of life.
Contact Us :: Suggestion Box
Reach out. Say hi. Share your hopes, ideas, and frustrations.
The Brains Behind EDS Hub
EDS Hub, a site for best-practice education and resources for Ehlers-Danlos Syndromes and associated conditions, was launched in 2020 by Australian patient-researchers S. Jade Barclay and Rouha M.S. Granfar, who have both been living with EDS and its many complex delights for decades.
Jade is currently conducting world-first research investigating management priorities and health literacy for hEDS patients and clinicians. Rouha is conducting connective tissue and immunology research and is an administrator of one of Facebook’s largest EDS support groups.
